Welcome
Download and Read Our Latest Survey Results
> Feedback regarding the research conducted by The Parkinson Alliance. (Dec. 07) The Parkinson Alliance regularly pursues feedback regarding the research that we conduct. We request feedback about each survey in hopes to ensure that we are meeting the needs of our “community.” We recently conducted phone interviews with participants of our research endeavors to pursue feedback about past surveys and the future direction of research conducted by The Parkinson Alliance.
> Differential Impact of Coping Styles on Quality of Life for Individuals with Parkinson's Disease with and without Deep Brain Stimulation. (Oct. 2007) Individuals with Parkinson’s disease (PD) are faced with the challenge of coping with a chronic, progressive disease that will alter their lives in numerous ways.
Articles
> Does Deep Brain Stimulation (DBS) prevent progression of Parkinson’s Disease (PD) or it only masks some of the symptoms of PD? Long term biochemical changes in the Parkinsonian brain with and without deep brain stimulation using Magnetic Resonance Spectroscopy (MRS) ... read more
> In August 2006, The Parkinson Alliance attended the Neural Interfaces Workshop in Bethesda, Maryland, which was sponsored by the National Institute of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS). ... read more
Research
> Guidelines for management of motor complications in PD.
This article is a summary of the progression of motor complications seen in the early and later stages of Parkinson’s disease as well as how best to manage those symptoms.
News
Fate Lends a Helping Hand
By Valerie Graham
New! Instructional DVD from Dr. David Heydrick
The Parkinson’s Pyramid® Pyradigm of Health
The Parkinson Alliance was invited to present two of their research projects at the 36th Annual Meeting of the International Neuropsychological Society (INS) in Waikoloa, Hawaii. Read more.
On behalf of DBS-STN.org, I invite you to get involved.
DBS-STN.org is committed to helping improve the quality of life of DBS-STN patients and their caregivers. Through patient and caregiver surveys, we are not only asking questions but providing answers that will help the DBS-STN community. Please join us in coming together, discussing issues, and answering questions.
For your convenience, we've also added links to the latest health-related news stories.
Margaret Tuchman, Founder of DBS-STN.org, President of The Parkinson Alliance, and DBS-STN patient 12/00
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Please visit our Forum area to ask any question relating to DBS-STN. Your questions and the resulting answers benefits the entire DBS-STN community. By discussing issues facing DBS-STN patients, we all learn. Help yourself. Help others. In addition to postings from patients and caregivers, advisors to the forum include a neurologist, a neurophysiologist, neurosurgeon, and a nurse practitioner. Join the Forum. |
Find a DBS programmer
Finding a DBS programmer in your area can be challenging but very important for the longterm care and maintenance of neurostimulator implants. We have recently launched a website, www.dbsprogrammer.com, that is now available to help current and future patients find DBS programmers. Programmers are registered by state and each will have their own web page with biographical information and appointment scheduling information. Individuals or patients can also register for updates that are sent when new programmers are added. Help build this much needed database by asking your programmer to register.
Health News