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Speech in Individuals with Parkinson's Disease with and without Deep Brain Stimulation. (Jan. 09)
Articles
> Does Deep Brain Stimulation (DBS) prevent progression of Parkinson’s Disease (PD) or it only masks some of the symptoms of PD? Long term biochemical changes in the Parkinsonian brain with and without deep brain stimulation using Magnetic Resonance Spectroscopy (MRS) ... read more
Research
Non-motor functioning after implantation of DBS-PPN.
This is a follow-up article from an earlier study that looked at the efficacy of bilateral deep brain stimulation of both the Subthalamic Nucleus (STN) and the Pedunculopontine (PPN; another target under evaluation for the surgical treatment of PD).
News
The Parkinson Alliance Pays Customer Visit to Medtronic.
MyPDSupport.com YouTube Video and Website!
The Science and Practice of LOUD: Empowering People with Parkinson disease.
"Life With a Battery-Operated Brain, A Patient's Guide to Deep Brain Stimulation for Parkinson's Disease"
On behalf of DBS-STN.org, I invite you to get involved.
DBS-STN.org is committed to helping improve the quality of life of DBS-STN patients and their caregivers. Through patient and caregiver surveys, we are not only asking questions but providing answers that will help the DBS-STN community. Please join us in coming together, discussing issues, and answering questions.
For your convenience, we've also added links to the latest health-related news stories.
Margaret Tuchman, Founder of DBS-STN.org, President of The Parkinson Alliance, and DBS-STN patient 12/00
Parkinson’s Disease
On April 1st-3rd The Parkinson Alliance (with shared sponsorship provided by the Davis Phinney Foundation, the LSVT Foundation, and the National Parkinson Foundation) convened a panel of the world’s experts on DBS for PD. The task assigned to these experts was not to craft a typical consensus statement for themselves, but to come up with a document aimed squarely at their true customers—the patients. These world leaders discussed the current matters related to DBS therapy and where we need to go with this intervention. The ultimate focus was on improving the effectiveness of the intervention and the quality of life of those individuals who have undergone or those who will choose to undergo DBS.
The topics of the Consensus Meeting were many and included patient selection, gait and speech DBS outcomes, non-motor DBS outcomes (mood and cognition) and long-term DBS outcomes, to name a few.
View a written report of the Open Forum that occurred at the Consensus Meeting.
Find a DBS programmer
Finding a DBS programmer in your area can be challenging but very important for the longterm care and maintenance of neurostimulator implants. We have recently launched a website, www.dbsprogrammer.com, that is now available to help current and future patients find DBS programmers. Programmers are registered by state and each will have their own web page with biographical information and appointment scheduling information. Individuals or patients can also register for updates that are sent when new programmers are added. Help build this much needed database by asking your programmer to register.
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Health News